Comments on: 15 Things not to say to someone with a chronic illness or invisible illness https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/ Green cleaning, DIY, crafts, organizing, and more Thu, 27 Dec 2018 11:16:06 +0000 hourly 1 https://wordpress.org/?v=5.8.4 By: Georgie https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-67443 Thu, 27 Dec 2018 11:16:06 +0000 http://pinsandprocrastination.com/?p=402#comment-67443 In reply to Colton.

Me too especially my fiancé who thinks exercise is cure all. My knees are bone on bone and I’m losing weight to get both knees replaced I have 60 lbs to go but when I started out about 7-8 months ago I had 130 to lose.

]]> By: Lynn https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-56043 Thu, 14 Dec 2017 20:04:07 +0000 http://pinsandprocrastination.com/?p=402#comment-56043 Currently dealing with my second go at Ovarian Cancer in less than two and a half years. This time, it has metasticized to my colon and liver…so no, it can’t be in my ovaries since I had them removed. Don’t really want to get in the discussion that the type of cancer remains the first diagnosis regardless of where it recurs. In addition, I chose a different chemo treatment to keep my hair for my son’s wedding. Since I’m not bald this time, I consistently get the “You don’t look sick” comment. Almost makes me feel as if people doubt that I am going through treatment again. Who would make this stuff up?

]]> By: Naiya https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-55330 Tue, 21 Nov 2017 22:23:20 +0000 http://pinsandprocrastination.com/?p=402#comment-55330 I loved this article. I have POTS too and I’m 15. I feel like a lot of times, people say things and they are trying to be nice, but they really don’t get it. This made me happy, which I really needed today.

]]> By: Elin https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-47675 Sat, 10 Sep 2016 15:01:01 +0000 http://pinsandprocrastination.com/?p=402#comment-47675 Thank you. Thank you so much for writing this.

]]> By: Liz https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-47088 Sun, 24 Jul 2016 01:36:23 +0000 http://pinsandprocrastination.com/?p=402#comment-47088 Yesterday I heard, “Maybe all those medications are making you sick.” Today it’s “Don’t you have a pain pill or something you can take?” All I wanted to hear after being too sick to clean or cook was, “I’m sorry you feel bad, want me to get you some tea?”

]]> By: Susie https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-45880 Fri, 22 Apr 2016 01:03:50 +0000 http://pinsandprocrastination.com/?p=402#comment-45880 In reply to Lynn Voedisch.

Good to know that I’ll have someone on the block who understands!

]]> By: Lynn Voedisch https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-45879 Thu, 21 Apr 2016 22:05:01 +0000 http://pinsandprocrastination.com/?p=402#comment-45879 In reply to Lynn Voedisch.

Lots of typos there. Sorry. My nails are growing out too long. Must go to the manicurist.

]]> By: Lynn Voedisch https://pinsandprocrastination.com/15-things-not-to-say-to-someone-with-a-chronic-illness-or-invisible-illness/#comment-45878 Thu, 21 Apr 2016 22:03:50 +0000 http://pinsandprocrastination.com/?p=402#comment-45878 Susie, this is Lynn you soon-to-be new neighbor.

Great blog.
I have had chronic migraines, plus tension headaches for 30 years. I have heard every one of those stupid comments, but I think the worst is “Gee is must be nice to take a nap in the middle of the day.” Or maybe it was my sister saying that I just came down with migraines because I didn’t what to see them. I had to explain that I get heachaches ALL THE TIME, what made her so special? I also hated the “you take too medicines” comment. Sure my medicine cabinet is full of pill bottles, but most are just drugs doctors tried and then abandoned. I supposed I should remove them from the bathroom and put the somewhere secret, as you never know when you might need a drug again.

I’ve lost a lot of friends because of this disease, but due to a new electronic device that you call the Cefaly (worn on the forehead for 20 minutes day), my migraine days are way decreased. It’s just the the tension headaches are moving in to take their place. Sigh

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